Trijn waited 11 years for ACNES/LACNES/POCNES diagnose

Interview with Trijn Hidding who suffers from ACNES/LACNES/POCNES, a rare medical condition of the nervous system. She had to wait 11 years for the right diagnose. She tells about what it is like living with the illness and with having a euthanasia declaration that she can rely on when she feels it is time to do so.

https://www.linda.nl/persoonlijk/trijn-37-kreeg-pas-na-11-jaar-pijn-diagnose-euthanasieverklaring-uitweg/